500,000 people have been forgotten and left behind, unfairly affected by Covid. Many are still shielding, still in isolation. Still unable to work, see friends or hug loved ones. Evusheld offers them the chance to live a more normal and free life. Read more
Join myaware, amend your membership, or cancel Read more
Ways to support myaware while you are at home Read more
Zilucoplan has received initial negative guidance from NICE ...we have prepared a guide for those who may not have done this before.. read more here. Read more
Learn more about Zilucoplan (Zilbrysq) Read more
Learn more about Rozanolixizumab (Rystiggo) Read more
UCB are recruiting MG patients for a paid 60-minute telephone/web-based interview opportunity. Read more
Raising awareness of Myasthenia. Read more
Spare 5 minutes of your time to get a better understanding of the myasthenias... Read more
Help us to help people with myasthenia...take our 3 minute survey.. Read more
Helping GPs to diagnose and refer Myasthenia patients effectively Read more
Help raise awareness with our downloadable phone wallpapers and resources! Read more
Get involved in our Myasthenia Awareness Month Fundraising Initiative Read more
Find out about global awareness events Read more
Everyone's journey to diagnosis differs. Watch our member videos to learn more. Read more
If you've missed the chance to join any myaware webinars you can watch them again here! Read more
Take part in the London Marathon 2025, the greatest marathon in the world! Sunday 27 April 2025 Read more
Raising awareness amongst GPs to reduce diagnosis time Read more
VML are a medical communications company keen to learn more about the unmet needs of those living with myasthenia.... Read more
The EUMGA has relocated to Belgium .... read more here Read more
Current Vacancies in myaware...click here for more details. Read more
COUCH Health is inviting people living in the UK with myasthenia gravis to participate in an online interview session. Read more
Myaware and MDUK sent a joint letter to NICE and the related companies about targeted therapeutics in the myasthenia community. Read more about our letter and petition here Read more
A webinar recording by Dr Katherine Dodd, Neurology Clinical Research Fellow, discussing emerging treatments, exercise, lifestyle, and individualising care using biomarkers on 21st February 2024 Read more
Myaware are continuing to engage with the relevant companies linked to the Propantheline Bromide shortage. In the meantime, we have some guidance regarding alternatives and importers for unlicensed propantheline. Read more
Efgartigimod is due to be assessed in a 3rd committee meeting with NICE in May. We are looking for the myaware community to put forth their own comments about the appraisal process so far and have prepared a guide for those who may not have done this before. Read more
There is currently a supply shortage of Propantheline Bromide. Though muscle relaxants can be contraindicated in myasthenia, Buscopan is an alternative. Read more