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  1. Home
  2. About myaware

About myaware

UK neuromuscular disease: by the numbers

UK neuromuscular disease: by the numbers

In 2021, Iain M. Carey from St George’s published a study looking into the prevalence of neuromuscular disease in the UK. Read more

Published: 12th January, 2024

Updated: 19th January, 2024

Author: Nicholas Pryce

Our Mission

Our Mission

Myaware is dedicated to the care and support of people affected by myasthenia. Read more

Published: 4th October, 2023

Updated: 25th February, 2026

Author: Chris Millard

Membership Benefits

Membership Benefits

Learn more about myaware lifetime membership Read more

Published: 3rd September, 2020

Updated: 13th December, 2023

Author: Nicholas Pryce

Staff

Staff

Contact staff at Myaware Read more

Published: 3rd September, 2020

Author: Chris Millard

Myaware board members

Myaware board members

Meet the myaware board members. Read more

Published: 3rd September, 2020

Author: Chris Millard

Annual Accounts

Annual Accounts

Read more

Published: 8th April, 2020

Updated: 12th January, 2026

Author: Chris Millard

Contact Us

Contact Us

We're here to help you! Read more

Published: 7th April, 2020

Updated: 4th June, 2024

Author: Chris Millard

Volunteer

Volunteer

At myaware, there is always work to be done. Many of our team are volunteers, and help with our daily activities, whether ongoing or a one-off, is always welcome. Read more

Published: 12th July, 2017

Updated: 8th March, 2025

Author:

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Latest

  • July Drop In - Zoom

    July Drop In - Zoom

    How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands?

  • Gut Health and Myasthenia

    Gut Health and Myasthenia

    Watch our webinar on gut health and myasthenia and learn more about how you really are what you eat!

  • Urgent Myasthenia Awareness Month Appeal 2026

    Urgent Myasthenia Awareness Month Appeal 2026

    Can you help us kickstart a fund for our essential National Patient Registry by donating £20?

  • Jess's Story

    Jess's Story

    Read Jess's inspiring journey of resilience as she navigates life with myasthenia gravis, overcoming challenges and finding strength in herself and others.

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Top Tips

    Top Tips

    Read our top tips on how to live with myasthenia including information you may find useful.

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Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England)

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