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Information for Medical Professionals

Living with Myasthenia

Medical Professionals Resource Centre

This section is intended for medical professionals as a useful source of information on diagnosis, treatment and support of people with myasthenia.

Published:

Author: Kajal Mansha

The Neuromuscular Junction

To understand myasthenia, it helps to understand how the neuromuscular junction should work.

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Author: Chris Albas-Martin

Drugs to Avoid

In theory, more than 30 drugs currently used for many different conditions can interfere with nerve → muscle transmission.

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Author: Chris Albas-Martin

Driving

A common fear when first diagnosed with myasthenia is that you will never be able to drive again. This is not necessarily true, however people with myasthenia MUST inform the Driver and Vehicle Licensing Agency (DVLA) that they have the condition.

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What is Myasthenia

Myasthenia means muscle weakness

  • Myasthenia affects all ages and genders. It is treatable and can be brought under good control with medication. In some circumstances, it can be fatal.
  • It affects the muscles that let you move but not the automatic ones like your heart that you don't have to think about. Your brain tells your muscles to work, but the message doesn't get through.
  • Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault.

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Member Stories

  • Zenaida and Maria's Story

    Read the incredible stories of Maria and Zenaida, who both come from a tiny village in Portugal and have myasthenia. Read more

  • Vicky's Story

    Vicky takes through her life journey with myasthenia. Read more

  • Sannah's Story

    Meet Sannah. Sannah was diagnosed with myasthenia gravis in 2014 and has since become a key fundraiser for myaware and is active in the Young Generation support group. Read more