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Living with Myasthenia

Association of British Neurologists' Management Guidelines

The ABN's myasthenia gravis Management Guidelines are designed to guide physicians in the management of myasthenia gravis.

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Myasthenia and Pregnancy

Read more about myasthenia and pregnancy

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Drugs to Avoid

In theory, more than 30 drugs currently used for many different conditions can interfere with nerve → muscle transmission.

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Author: Chris Albas-Martin

Driving

A common fear when first diagnosed with myasthenia is that you will never be able to drive again. This is not necessarily true, however people with myasthenia MUST inform the Driver and Vehicle Licensing Agency (DVLA) that they have the condition.

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What is Myasthenia

Myasthenia means muscle weakness

  • Myasthenia affects all ages and genders. It is treatable and can be brought under good control with medication. In some circumstances, it can be fatal.
  • It affects the muscles that let you move but not the automatic ones like your heart that you don't have to think about. Your brain tells your muscles to work, but the message doesn't get through.
  • Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault.

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Member Stories

  • Joelle's Story

    After a diagnosis of myasthenia in 2016, Joelle experienced a lengthy stay in hospital, until a Facebook message to myaware helped to change things. Read more

  • Debbie's Story

    Debbie has three autoimmune conditions, but she hasn't let that stop her from regularly running marathons Read more

  • Jimmy's Story

    Jimmy has congenital myasthenia. From the age of nine, he was unable to stand and has been reliant on a wheelchair. Until he started trialing a new drug... Read more