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Information for Medical Professionals

Living with Myasthenia

Medical Professionals Resource Centre

This section is intended for medical professionals as a useful source of information on diagnosis, treatment and support of people with myasthenia.

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Author: Kajal Mansha

Association of British Neurologists' Management Guidelines

The ABN's myasthenia gravis Management Guidelines are designed to guide physicians in the management of myasthenia gravis.

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Insurance

At myaware, we understand that living with myasthenia can make finding suitable or affordable insurance products a challenge. That's why we've teamed up with Fish Insurance.

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Author: Siobhan Yavanna

Driving

A common fear when first diagnosed with myasthenia is that you will never be able to drive again. This is not necessarily true, however people with myasthenia MUST inform the Driver and Vehicle Licensing Agency (DVLA) that they have the condition.

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What is Myasthenia

Myasthenia means muscle weakness

  • Myasthenia affects all ages and genders. It is treatable and can be brought under good control with medication. In some circumstances, it can be fatal.
  • It affects the muscles that let you move but not the automatic ones like your heart that you don't have to think about. Your brain tells your muscles to work, but the message doesn't get through.
  • Myasthenia gravis, ocular myasthenia and Lambert-Eaton myasthenic syndrome are autoimmune conditions whereas congenital myasthenic syndrome is caused by an inherited genetic fault.

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Member Stories

  • Richard's Story

    Richard's concerned about the impact myasthenia will have on his life, particularly as he lives on his own. Read more

  • Patti and The Railway Man

    Patti Lomax is better placed to talk about myasthenia than most as she has been married to two people who had myasthenia gravis, one of whom was the Railway Man, Eric Lomax. Read more

  • Jimmy's Story

    Jimmy has congenital myasthenia. From the age of nine, he was unable to stand and has been reliant on a wheelchair. Until he started trialing a new drug... Read more