We’re here to provide expert support and advice for people affected by myasthenia

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Support our work

It costs approximately £2000 per day to raise vital awareness and support our members and their families and carers. You can help us to do this by getting involved

Coronavirus Information

Information about Coronavirus and shielding.

Published:

Author: Chris Millard

Contact Us

Details on how to access our support as well as changes to Myaware services after the impact of COVID-19.

Published:

Author: Chris Millard

Fundraising for myaware

Raise vital funds for myaware to support our work.

Published:

Author: Chris Millard

Myaware appeals

Donate to myaware and help us continue our work.

Published:

Author: Chris Millard

The scale of our challenge

3000

Myaware currently supports around 3000 people living with myasthenia and their families and carers

12,000

It is estimated that there are approximately 12,000 people living with myasthenia in the UK

£1,182,982

In the last five years myaware has spent £1,182,982 on research into the myasthenias

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Upcoming Events

  • Skip Some and Give Some Challenge 2022

    Can you commit to making a small change in your own life for twelve months while also helping to change the lives of others? Read more

  • LEMS Support Online Meeting

    Has it been a while since you spoke to anyone else who has Lambert Eaton Myasthenic Syndrome or LEMS?... Read more

  • CMS Members Drop In Zoom Session

    This drop in session is specifically for members with Congenital Myasthenic Syndrome (CMS) where we will be able to offer you a chance to meet up, share your experiences and hear updates from our support team. Read more

  • October New Members Zoom

    If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ Read more

Member Stories

  • Fiona's Story

    I want to raise as much awareness for myaware as possible, as my pharmacist and diabetic nurse didn't know what myasthenia was. If I see first aiders I always go and chat with them about myasthenia. Most of them have never heard of it either. Read more

  • Christine's Story

    Read more