Can you help us kickstart a fund for our essential National Patient Registry by donating £20? Read more
Join us this June to raise awareness, attend events, fundraise, and celebrate 50 years of myaware supporting the myasthenia community. Read more
Adam shares his inspiring journey of resilience through Myasthenia Gravis, Thymoma, and recovery, offering hope and support to others. Read more
Rozanolixizumab has become the first targeted therapy to be approved for the treatment of refractory generalised myasthenia gravis and will be eligible for reimbursement via NHS England. Read more
We’re here to provide expert support and advice for people affected by myasthenia
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It costs approximately £2000 per day to raise vital awareness and support our members and their families and carers. You can help us to do this by getting involved
Myaware's support services - find out more about how we help people with myasthenia.
Help raise awareness, get recent news updates...find out more on our awareness page.
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Raise vital funds for myaware to support our work.
Myaware currently supports around 3000 people living with myasthenia and their families and carers
It is estimated that there are approximately 20,000 people living with myasthenia in the UK
In the last five years myaware has spent £1,182,982 on research into the myasthenias
Is your bucket list getting too long? Are you ready to tick some things off? Let’s begin the adventure Read more
This June, as part of Myasthenia Awareness Month, we’re inviting you to bring people together for something simple, joyful, and meaningful: sharing food. Read more
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Join us for the second of our 2026 MAM online sessions ‘Living Well with Myasthenia’ with Dr Sui Wong. Read more
My name is Elizabeth, but most people call me Liz. I have LEMS or Lambert Eaton Myasthenia Read more
I first thought I might have an unusual medical problem when I was at the Farnborough Air Show in 1990 as a guest of one of the main military aircraft manufacturers. Read more