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  1. Home
  2. life with myasthenia

life with myasthenia

Coping in hot weather

Coping in hot weather

How to manage myasthenia in hot weather Read more

Published: 22nd July, 2021

Updated: 20th August, 2021

Author: Chris Millard

Myasthenia and Pregnancy

Myasthenia and Pregnancy

Read information about myasthenia and pregnancy - before, during and afterwards. Read more

Published: 1st September, 2020

Updated: 3rd July, 2023

Author:

Drugs to Avoid

Drugs to Avoid

Reactions to drugs are specific to the individual. Nature has made the ignition system very secure. Read more

Published: 31st August, 2020

Updated: 25th July, 2023

Author: Chris Albas-Martin

Information for Women

Information for Women

Women experience the same problems as men with myasthenia, but may have extra difficulties.. Read more

Published: 4th August, 2020

Updated: 1st November, 2022

Author: Siobhan Yavanna

Vaccination Information

Vaccination Information

Vaccines can be a concern but most are safe. Read more

Published: 4th July, 2020

Updated: 1st September, 2023

Author: Siobhan Yavanna

Food & Myasthenia

Food & Myasthenia

Our soft food recipe page for you to enjoy. Read more

Published: 4th June, 2020

Updated: 9th September, 2020

Author: Chris Millard

Employment Information

Employment Information

Many people with myasthenia continue to work. Read more

Published: 4th May, 2020

Updated: 9th September, 2020

Author:

Schools & Education

Schools & Education

How to help people with myasthenia through the school day. Read more

Published: 4th April, 2020

Updated: 10th September, 2020

Author:

Dentistry and Myasthenia

Dentistry and Myasthenia

Communication between you and your dentist is vital. Read more

Published: 4th February, 2020

Updated: 4th September, 2020

Author: Siobhan Yavanna

Meet people with Myasthenia

Meet people with Myasthenia

People's real life stories about living with myasthenia. Read more

Published: 4th January, 2020

Updated: 21st July, 2021

Author: Chris Millard

Skin & immunosuppressants

Skin & immunosuppressants

If you are taking immunosuppressant medication, it is important to take good care of your skin. Read more

Published: 20th February, 2019

Updated: 10th September, 2020

Author: Chris Albas-Martin

ABN Management Guidelines

ABN Management Guidelines

Guidelines to help physicians manage myasthenia. Read more

Published: 12th July, 2017

Updated: 15th November, 2022

Author:

Anaesthetic and Myasthenia

Anaesthetic and Myasthenia

Information for people about anaesthetics and myasthenia. Read more

Published: 4th March, 2017

Updated: 9th October, 2020

Author: Chris Albas-Martin

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Latest

  • Fiona's Story

    Fiona's Story

    I want to raise as much awareness for myaware as possible, as my pharmacist and diabetic nurse didn't know what myasthenia was. If I see first aiders I always go and chat with them about myasthenia. Most of them have never heard of it either.

  • Efgartigimod: NICE Appraisal Update

    Efgartigimod: NICE Appraisal Update

    Guidance not recommending the use of Efgartigimod on the NHS. Click here to find out more...

  • LEMS Support Online Meeting

    LEMS Support Online Meeting

    Has it been a while since you spoke to anyone else who has Lambert Eaton Myasthenic Syndrome or LEMS?...

  • Autumn 2023 Flu and Covid Vaccination Programme

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • LEMS

    LEMS

    Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

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