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About myaware

Membership

Membership

Join or renew your myaware membership Read more

Published: 3rd September, 2020

Updated: 17th November, 2020

Author: Chris Millard

Staff

Staff

Contact staff at Myaware Read more

Published: 3rd September, 2020

Author: Chris Millard

Myaware board members

Myaware board members

Meet the myaware board members. Read more

Published: 3rd September, 2020

Author: Chris Millard

Contact Us

Contact Us

Details on how to access our support as well as changes to Myaware services after the impact of COVID-19. Read more

Published: 7th April, 2020

Updated: 23rd September, 2021

Author: Chris Millard

Our Mission

Our Mission

Myaware is dedicated to the care and support of people affected by myasthenia. Read more

Published: 8th July, 2017

Updated: 27th July, 2023

Author:

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Latest

  • MHRA Guidance Update - Statins

    MHRA Guidance Update - Statins

    The Medicines and Healthcare products Regulatory Agency (MHRA) have released new guidance following a small number of reports of myasthenic aggravation in patients taking statins.

  • Fiona Norwood

  • Fiona's Story

    Fiona's Story

    I want to raise as much awareness for myaware as possible, as my pharmacist and diabetic nurse didn't know what myasthenia was. If I see first aiders I always go and chat with them about myasthenia. Most of them have never heard of it either.

  • Efgartigimod: NICE Appraisal Update

    Efgartigimod: NICE Appraisal Update

    Guidance not recommending the use of Efgartigimod on the NHS. Click here to find out more...

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • LEMS

    LEMS

    Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

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Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England)

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