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Please contact us using the following details:

Myaware
The College Business Centre
Uttoxeter New Road
Derby
Derbyshire
DE22 3WZ

T: 01332 290219
E: [email protected]

Help us improve and send your feedback to [email protected]

For general support enquiries contact 01332 949161 or email [email protected]

For fundraising enquiries contact 01332 949162 or email [email protected]

Latest

Dr Heidi Harrison - CEO
Dr Channa Hewamadduma
Guidance for Posting Public Comments – NICE appraisal for zilucoplan

Zilucoplan has received initial negative guidance from NICE ...we have prepared a guide for those who may not have done this before.. read more here.
Zilucoplan

Learn more about Zilucoplan (Zilbrysq)

Related

UK neuromuscular disease: by the numbers

In 2021, Iain M. Carey from St George’s published a study looking into the prevalence of neuromuscular disease in the UK.
Our Mission

Myaware is dedicated to the care and support of people affected by myasthenia.
Membership Benefits

Learn more about myaware lifetime membership
Staff

Contact staff at Myaware
Myaware board members

Meet the myaware board members.
Annual Accounts
Volunteer

At myaware, there is always work to be done. Many of our team are volunteers, and help with our daily activities, whether ongoing or a one-off, is always welcome.

Most read

Drugs to Avoid

Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.
The Extraocular Muscles

The extraocular muscles are the six muscles that control the movements of the eyes.
Ocular Myasthenia

Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.
What is myasthenia?

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.
Intravenous Immunoglobulin

IVIg is given intravenously into a vein via an infusion pump.
Myasthenia Gravis

Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.
Driving

People with myasthenia MUST inform the DVLA that they have the condition.
Thymectomy Information

Find out how a thymectomy can help people with myasthenia gravis.
Steroid Information Sheet

Steroids are a type of medication called an immunosuppressant.
LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.