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  1. Home
  2. Self Advocacy Stories

Self Advocacy Stories

Welcome to our Member Self Advocacy Stories page, a space dedicated to the powerful voices of our members who have taken action, spoken up, and made a difference in their own lives and communities.

These stories highlight the strength, resilience, and determination of individuals who have embraced self-advocacy to overcome challenges, assert their rights, and inspire others along the way.

Whether navigating healthcare, welfare, or everyday life, our members show that advocacy isn't just about speaking out, it's about being heard.

We invite you to explore these personal journeys, celebrate their successes, and gain inspiration to take charge of your own path.

Self-Advocacy Story: Tania Brooks

Self-Advocacy Story: Tania Brooks

All I ask is that they listen! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Shahina Khan

Self-Advocacy Story: Shahina Khan

They need to be educated! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Richard Nunn

Self-Advocacy Story: Richard Nunn

Who knows where I’d be? Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Kirstyn Flemming

Self-Advocacy Story: Kirstyn Flemming

It is vital that you advocate for yourself, all of the time! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Kim Spicer

Self-Advocacy Story: Kim Spicer

Self advocacy - a work in progress Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy story: Huw Simmonds

Self-Advocacy story: Huw Simmonds

I would urge anyone else to seek advice on how to best self-advocate when applying for benefits, it really does help! Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy story: Frances Ford

Self-Advocacy story: Frances Ford

In May 2021 I received a diagnosis of Generalised Myasthenia Gravis. Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

Self-Advocacy Story: Reasonable adjustments have really helped me at work!

I work for a transport company as a manager. I had been with the firm for years when I started developing symptoms of myasthenia. Read more

Published: 28th May, 2025

Updated: 30th May, 2025

Author: Nicholas Pryce

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Latest

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    Corporate supporter PHG Buying Ltd Raise £13,000 for myaware

    PHG Buying Ltd and partners raise £13,000 for myaware, supporting those affected by myasthenia and advancing research efforts.

  • Oxford University Hospitals CMS Study - Recruiting Now

    Oxford University Hospitals CMS Study - Recruiting Now

    Join Oxford Hospitals' CMS study to improve patient care and outcomes. Learn more about experiences and meaningful change in clinics.

  • August Drop In - Zoom

    August Drop In - Zoom

    How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands?

  • July Drop In - Zoom

    July Drop In - Zoom

    How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands?

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Top Tips

    Top Tips

    Read our top tips on how to live with myasthenia including information you may find useful.

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