We are keen to listen and hear about your experience to help us represent our members effectively and plan for future support services. Read more
How does your myasthenia impact on you and your family? Please help our colleagues at Oxford University with this survey. Read more
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A lovely aunt who was very welcoming to my wife when she entered the family. Will be missed Read more
Alexion is committed to patient centricity and in particular to understand and increase awareness of patients’ experience with their disease, how patients interact with their physicians, and how Alexion can be responsive to their questions and needs. Read more
Thank you to everybody who entered the photography competition. The standard of was very high and it was very difficult to pick the winners. Read more
If you are recently diagnosed and/or have just joined myaware then come along to our ‘New Member Zoom Session’ where we will be able to offer you practical and helpful support, a chance to meet some of the team and the opportunity to ask questions. Read more
For further information on NHS and UK devolved treatments, please click here! Read more
Information and links to country specific general and specific advice for higher risk patients Read more
In March 2022, Evusheld was authorised for use in the UK by the Medicines and Healthcare products Regulatory Agency (MHRA). Read more
Sunflower cards and lanyards for people with myasthenia. Read more
Husband, father, grandad and gramps. "A fighter of myasthenia til the end" May you rest now, pain free and at peace. Forever in our hearts. Xxx Read more
Find out about Early Access to Medicines Scheme Read more
Joan was a truly beautiful soul, so kind & caring and very creative too. Loved making clothes, knitting, decorating & gardening. I think everyone in the family will have had a handknitted cardigan from Joan at some point. Read more
Any donations made from sale of Scentsy products will be donated through Work for Good (https://workforgood.co.uk ). However, if you’d like to make a general donation to the work of myaware, you can do so on this page. Thanks everyone for your support! Read more
‘Speak out, spread the word’ - read Lisa's story Read more
Sharing our colours this Rare Disease Day! Read more
Viatris launches the first licensed Pyridostigmine oral solution 12mg/ml [60mg/5ml]. Read more