USA (MGFA)

The MG Awareness Wall (Jane Ellsworth's Kudoboard | Kudoboard) set up by the MGFA includes stories shared by patients from around the world. Get involved and add your story!

The MG Awareness Toolkit (2024-MG-Awareness-Toolkit.pdf (myasthenia.org)) Can be used to help turn your efforts in raising awareness of myasthenia into action.

A myasthenia colouring page for adults and children alike! (myasthenia.org)

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Dr Heidi Harrison - CEO
Dr Channa Hewamadduma
Guidance for Posting Public Comments – NICE appraisal for zilucoplan

Zilucoplan has received initial negative guidance from NICE ...we have prepared a guide for those who may not have done this before.. read more here.
Zilucoplan

Learn more about Zilucoplan (Zilbrysq)

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Drugs to Avoid

Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.
The Extraocular Muscles

The extraocular muscles are the six muscles that control the movements of the eyes.
Ocular Myasthenia

Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.
What is myasthenia?

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.
Intravenous Immunoglobulin

IVIg is given intravenously into a vein via an infusion pump.
Myasthenia Gravis

Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.
Driving

People with myasthenia MUST inform the DVLA that they have the condition.
Thymectomy Information

Find out how a thymectomy can help people with myasthenia gravis.
Steroid Information Sheet

Steroids are a type of medication called an immunosuppressant.
LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.