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Fiona's Story

I want to raise as much awareness for myaware as possible, as my pharmacist and diabetic nurse didn't know what myasthenia was. If I see first aiders I always go and chat with them about myasthenia. Most of them have never heard of it either.
Efgartigimod: NICE Appraisal Update

Guidance not recommending the use of Efgartigimod on the NHS. Click here to find out more...
LEMS Support Online Meeting

Has it been a while since you spoke to anyone else who has Lambert Eaton Myasthenic Syndrome or LEMS?...
Autumn 2023 Flu and Covid Vaccination Programme

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Drugs to Avoid

Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.
The Extraocular Muscles

The extraocular muscles are the six muscles that control the movements of the eyes.
Ocular Myasthenia

Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.
Intravenous Immunoglobulin

IVIg is given intravenously into a vein via an infusion pump.
Thymectomy Information

Find out how a thymectomy can help people with myasthenia gravis.
Myasthenia Gravis

Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.
Driving

People with myasthenia MUST inform the DVLA that they have the condition.
LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.
Steroid Information Sheet

Steroids are a type of medication called an immunosuppressant.
What is myasthenia?

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.