ARGX-119 (Congenital Myasthenic Syndromes)

Company: Argenx

Clinical trial(s): Phase 1 (estimated completion 2/8/24, no UK trial sites)

Latest

September Drop In – Zoom

Would you like to have a chat with other members, would it be nice to meet others, put voices to names and just have a chat... then our drop-in session is perfect for you!
December Drop In – Zoom

Would it be nice to meet others, put voices to names and just have a chat... then our drop-in session is perfect for you!
November Drop In – Zoom

How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias?
October Drop In – Zoom

Would you like to have a chat with other members, ask those questions that have been bothering you? Our drop-in session is perfect for you!

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Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.
The Extraocular Muscles

The extraocular muscles are the six muscles that control the movements of the eyes.
Ocular Myasthenia

Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.
What is myasthenia?

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.
Intravenous Immunoglobulin

IVIg is given intravenously into a vein via an infusion pump.
Myasthenia Gravis

Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.
Driving

People with myasthenia MUST inform the DVLA that they have the condition.
Thymectomy Information

Find out how a thymectomy can help people with myasthenia gravis.
Steroid Information Sheet

Steroids are a type of medication called an immunosuppressant.
LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.