Oxford CMS Highly Specialist Service are undertaking a natural history study in people with different CMS subtypes. The aim is to identify better ways of measuring the impact CMS has on people and disability which should help prepare the way for future gene therapy and other treatment trials. 

The study began in February 2022, and they are still actively recruiting people to take part.

For more information you can contact the project team by:

Email: [email protected] or call: 01865 231915