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  1. Blog

People's Stories

My journey with myasthenia

My journey with myasthenia

My journey with Myasthenia Read more

Posted to: People's Stories

Published: 30th July, 2017

Our Journey  with myaware: Joseph & Deborah Hodson

Our Journey with myaware: Joseph & Deborah Hodson

Our Journey so far with myaware by Joseph & Deborah Hodson Read more

Posted to: People's Stories

Published: 31st July, 2017

Updated: 1st March, 2022

Meet Sarah

Meet Sarah

Read Sara's story in full about her journey with myasthenia. Read more

Posted to: People's Stories

Published: 1st August, 2017

Updated: 13th December, 2021

Alexandra's Journey

Alexandra's Journey

Meet Alexandra and read about her journey with myasthenia. Read more

Posted to: People's Stories

Published: 1st August, 2017

Updated: 13th December, 2021

Sannah's Story

Sannah's Story

Sannah was diagnosed with myasthenia gravis in 2014. She is a key fundraiser for myaware and active in the Young Generation support group. Read more

Posted to: People's Stories

Published: 3rd August, 2017

Updated: 7th September, 2020

Author: Kajal Mansha

Laurna's Story

Laurna's Story

Laurna talks about living with myasthenia in her twenties. I had a thymectomy and symptoms continue although have improved. Read more

Posted to: People's Stories

Published: 4th August, 2017

Updated: 7th September, 2020

Author: Siobhan Yavanna

Zenaida and Maria's Story

Zenaida and Maria's Story

Read the incredible stories of Maria and Zenaida, who both come from a tiny village in Portugal and have myasthenia. Read more

Posted to: People's Stories

Published: 4th August, 2017

Updated: 5th January, 2018

Author: Siobhan Yavanna

Matthew's Story

Matthew's Story

Matthew was diagnosed with myasthenia gravis in 2011 after he first noticed symptoms after finishing a game of rugby. He has managed to control his symptoms and completed the Brighton Marathon. Read more

Posted to: People's Stories

Published: 4th August, 2017

Updated: 5th January, 2018

Author: Siobhan Yavanna

Vicky's Story

Vicky's Story

Vicky takes through her life journey with myasthenia. To see where you have come from, you have to go back 'If you run into a wall” “don't turn around and give up. Figure out how to climb it, go through it or work around it.' Read more

Posted to: People's Stories

Published: 23rd August, 2017

Updated: 7th September, 2020

Author: Siobhan Yavanna

Bourbon's Story

Bourbon's Story

This is Bourbon, a 5-year-old working Cocker Spaniel, aptly named after the chocolate biscuit! Bourbon is a trained gundog (when she feels like it!) but is a pet first and foremost, and is completely spoilt. Read more

Posted to: People's Stories

Published: 24th August, 2017

Updated: 5th January, 2018

Author: Siobhan Yavanna

Maria's Story

Maria's Story

A head teacher and a fitness fanatic gives an insight on how her life affected by myasthenia. "Oh I know you. You're the lady who walks as if her feet really hurt" Read more

Posted to: People's Stories

Published: 1st September, 2017

Updated: 7th September, 2020

Author: Siobhan Yavanna

Richard's Story

Richard's Story

Richard's concerned about the impact myasthenia will have on his life, particularly as he lives on his own. I was so pleased that I found out about myaware..... Read more

Posted to: People's Stories

Published: 8th November, 2017

Updated: 7th September, 2020

Author: Kajal Mansha

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Showing 10 of 17

Latest

  • NEW fellowship funding opportunity

    NEW fellowship funding opportunity

    Myaware is pleased to be able to offer funding for a three-year Fellowship, to carry out research into any aspect of myasthenia gravis (MG) to start in summer/autumn 2023.

  • LEMS Support Session zoom

    LEMS Support Session zoom

    Join us for a LEMS support session. We will be talking all things LEMS with like minded people.

  • Midlands Drop-In Zoom

    Midlands Drop-In Zoom

    It has become evident that getting together regionally is very important! We'd therefore like to invite you to join us and other members in your area to our drop-in zoom to catch up and connect with each other again.

  • South East & Essex Drop-In Zoom

    South East & Essex Drop-In Zoom

    It has become evident that getting together regionally is very important! We'd therefore like to invite you to join us and other members in your area to our drop-in zoom to catch up and connect with each other again.

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • Pyridostigmine Information

    Pyridostigmine Information

    common questions patients ask about pyridostigmine.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • LEMS

    LEMS

    Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • Living with Myasthenia

    Living with Myasthenia

    Read our top tips on how to live with myasthenia including information you may find useful.

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Myaware is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England)

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