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  1. Home
  2. life with myasthenia

life with myasthenia

MMR Vaccine Update - August 2025

MMR Vaccine Update - August 2025

Read more about the current changes to the MMR vaccine and how this affects immunosuppressed patients. Read more

Published: 20th August, 2025

Updated: 26th August, 2025

Author: Charlotte Carpenter

Specialists in Myasthenia

Specialists in Myasthenia

Myasthenia is a rare disease and insight from a specialist can help with treatment. Find out if there is a clinician with an interest in myasthenia near you. Read more

Published: 12th January, 2024

Updated: 2nd December, 2025

Author: Nicholas Pryce

Coping in hot weather

Coping in hot weather

How to manage myasthenia in hot weather Read more

Published: 22nd July, 2021

Updated: 20th August, 2021

Author: Chris Millard

Myasthenia and Pregnancy

Myasthenia and Pregnancy

Read information about myasthenia and pregnancy - before, during and afterwards. Read more

Published: 1st September, 2020

Updated: 3rd July, 2023

Author:

Drugs to Avoid

Drugs to Avoid

Reactions to drugs are specific to the individual. Nature has made the ignition system very secure. Read more

Published: 31st August, 2020

Updated: 12th January, 2026

Author: Chris Albas-Martin

Information for Women

Information for Women

Women experience the same problems as men with myasthenia, but may have extra difficulties.. Read more

Published: 4th August, 2020

Updated: 1st November, 2022

Author: Anonymised User

Vaccination Information

Vaccination Information

As many with myasthenia are treated with immunosuppression, vaccines can be a concern, but most are safe. Read more about the pneumonia, diphtheria, and other vaccines. Read more

Published: 4th July, 2020

Updated: 4th August, 2025

Author: Anonymised User

Food & Myasthenia

Food & Myasthenia

Our soft food recipe page for you to enjoy. Read more

Published: 4th June, 2020

Updated: 9th September, 2020

Author: Chris Millard

Employment Information

Employment Information

Many people with myasthenia continue to work. Read more

Published: 4th May, 2020

Updated: 8th April, 2025

Author:

Schools & Education

Schools & Education

How to help people with myasthenia through the school day. Read more

Published: 4th April, 2020

Updated: 10th September, 2020

Author:

Dentistry and Myasthenia

Dentistry and Myasthenia

Communication between you and your dentist is vital. Read more

Published: 4th February, 2020

Updated: 4th September, 2020

Author: Anonymised User

Meet people with Myasthenia

Meet people with Myasthenia

People's real life stories about living with myasthenia. Read more

Published: 4th January, 2020

Updated: 1st March, 2024

Author: Chris Millard

Skin & immunosuppressants

Skin & immunosuppressants

If you are taking immunosuppressant medication, it is important to take good care of your skin. Read more

Published: 20th February, 2019

Updated: 10th September, 2020

Author: Chris Albas-Martin

ABN Management Guidelines 2025

ABN Management Guidelines 2025

Guidelines to help physicians manage myasthenia. Read more

Published: 12th July, 2017

Updated: 2nd October, 2025

Author:

Anaesthetic and Myasthenia

Anaesthetic and Myasthenia

Information for people about anaesthetics and myasthenia. Read more

Published: 4th March, 2017

Updated: 9th October, 2020

Author: Chris Albas-Martin

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Latest

  • MAM Financial Wellbeing top tips

    MAM Financial Wellbeing top tips

    Our My Awareness Month (MAM) theme this year is ‘wellness’, and our Welfare Rights Team is offering a Zoom session on financial wellbeing. Join us for an interview with Charlie and Caroline, our Welfare Rights Advisers, about their top tips for financial wellbeing, and a chance to ask questions about all things welfare benefits and welfare rights.

  • July 2026 New Members Welcome and Introduction Zoom Session

    July 2026 New Members Welcome and Introduction Zoom Session

    If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ where we will offer you practical and helpful support, and a chance to meet some of the team and others in similar situations.

  • Meg & Ethan raise money for Myaware

    Meg & Ethan raise money for Myaware

    Ethan got diagnosed with Myasthenia Gravis at just 9 years old.

  • Latest Updates on Welfare Reforms – April 2026

    Latest Updates on Welfare Reforms – April 2026

    In 2025, the government announced several benefit changes due over the next few years. This page explains the main reforms and when they are expected to happen.

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Top Tips

    Top Tips

    Read our top tips on how to live with myasthenia including information you may find useful.

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