Poland (MG Face To Face Association) Expand On June 7-13, the Myasthenia Gravis- Face to Face Association organized a Tour de Miastenia - Face to Face idea to spread awareness of myasthenia gravis through the involvement of a community of cyclists who will cover a route along the Wisła River, commemorating the passing from the myasthenia community of Marcin, Maria and Ewelina, who passed away this year. Explore their facebook event here On June 15, the Myasthenia Gravis Association - Face to Face, under the auspices of the Department of Neurology at Warsaw Medical University - ERN EURO NMD Rare Neuromuscular Disease Expert Center, the Polish Neurological Society, the Polish Society of Child Neurologists and the European Myasthenia Gravis Association EuMGA, is organizing an educational meeting for patients “Myasthenia gravis - a disease with many faces. Workshop for Patients and their Families”. It will be held from 11 a.m. to 4 p.m. at the Children's Clinical Hospital in Warsaw, 63a Żwirki i Wigury Street. The program includes lectures by doctors and a psychologist. June 29-30- Myasthenia Gravis Association - Face to Face organizes the first Nationwide “ MG Walk with Face to Face” (PL: MG Spacer z Face to Face). Details will be available at miasteniagravis.pl and on the organization's social media. They are also running a biweekly podcast “with myasthenia gravis over coffee” ( PL: Z Miastenią przy kawie) which will be weekly with special episodes in the month of June. (on spotify, youtube, apple) Visit their website
Spain (AMES) Expand June 3rd - Informative table at La Fe Hospital (Valencia) Bienvenida Ruix June 3rd - Informative table at Infanta Sofía Hospital (Madrid) June 3rd-7th - Photographic exhibition at Virgen de la Victoria Hospital (Málaga) June 10th – 14th - Photographic exhibition at Alta Resolución de Benalmádena Hospital (Málaga) June 12th and 25th - Webinar with AMES psychologist, Beatriz Hernández, for family members of people affected by myasthenia from 6:00 p.m. to 7:30 p.m. Visit the website
USA (MGFA) Expand The MG Awareness Wall (Jane Ellsworth's Kudoboard | Kudoboard) set up by the MGFA includes stories shared by patients from around the world. Get involved and add your story! The MG Awareness Toolkit (2024-MG-Awareness-Toolkit.pdf (myasthenia.org)) Can be used to help turn your efforts in raising awareness of myasthenia into action. A myasthenia colouring page for adults and children alike! (myasthenia.org) Myasthenia.org
USA (MGA) Expand June 11th – MG Pride Panel, celebrating the intersection of the LGBTQ+ community and those living with myasthenia gravis. Register for the event June 14th (Register by June 10th) – Designing our lives with myasthenia gravis, a virtual coaching group for individuals living with MG. This is a 6-month program. Join here June 24th – Webinar from Dr Tina Ipe discussing plasmapheresis (6:30-7:30pm CST). Register here Join the webinar View the website