The impact of Coronavirus has meant that we are unable to hold our usual 'face-to-face' support group get-togethers, conferences and fundraising events across the country.
However, we are excited to invite you to our 'Zoom Support Sessions'!
They will be hosted by a support team member - only this time it'll be 'live from your lounge' (or somewhere you choose) via a secure link!
All Zoom support sessions will be opened 15 minutes before the meeting time to allow members to join.
We are aware that this is relatively new to some people and that some members might be reluctant to sign up. All we ask is that if you are willing to give it a go we'll do our best to assist you to join via your computer / device / telephone! We have a number of ways to accommodate all members regardless of tech knowledge and to make sure that all sessions are fully accessible.
If you want to try it out prior to the meeting these links may help;
Watch this space for more details!
Here are some FAQ's for first time Zoomers.......and accomplished ones too!
If you have any questions or require support please contact our team via the details below.
We hope that you can understand that the steps we have taken are to protect our vulnerable members. Thank you for your understanding and co-operation. We will endeavour to reinstate our support group meetings as soon as possible and we will issue weekly updates on our social media pages and groups as well as here on our website.
Can you commit to making a small change in your own life for twelve months while also helping to change the lives of others?
You are extremely welcome to come and join us for our CMS support and catch-up zoom. A great opportunity to connect and support one another.
Please come along to our “Specialist Nurse Q&A” Zoom Session, where we will hope to be able to offer you practical and helpful information and advice from our specialist nurse Seana Hughes from Kings College Hospital, London.
How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands?
If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’
It has become evident that getting together regionally is very important! We'd therefore like to invite you to join us and other members in your area to our drop-in zoom to catch up and connect with each other again.
Join us for a LEMS support session. We will be talking all things LEMS with like minded people.