Raise funds for children living with congenital myasthenia, just by wearing your jeans!

Jeans for Genes Day is coming soon! Join thousands of people across the UK taking part on Friday 21st September to help those living with genetic conditions - all you have to do is wear your jeans!

On Jeans for Genes Day, myaware is asking you to raise funds to help families living with congenital myasthenic syndrome (CMS). This is a rare hereditary condition which causes communication problems between the nerves and muscles, resulting in muscle weakness. You can find out more about this type of myasthenia here.

It affects children and young people like Jimmy. From the age of 9, Jimmy was unable to stand and had to rely on his wheelchair. Washing, getting out of bed and getting dressed were all tasks he needed help with. But when he was 17, with the help of research funded by myaware, doctors suggested he trial a new drug to treat his CMS. Within three days, Jimmy could stand and a couple of days later, he managed to walk a few steps. You can find out more about Jimmy’s Story here.

By taking part in Jeans for Genes Day at your school, workplace or community group, you will be raising funds both for myaware, to help people like Jimmy, and Genetic Disorders UK, to fund research and support into other genetic conditions.

To get your fundraising pack, sign up at: www.jeansforgenesday.org/sign-up. Remember to tick that you are affiliated to one of the charity’s partners, and select myaware from the list that appears.

For more information and support with your fundraising, please contact your local Regional Organiser or Regional Fundraiser, or email [email protected].