Cecilia was a wonderful wife, mum, nana, aunt & friend. Always gentle, patient and caring. She lived with myasthenia for a number of years. Cecilia will be greatly missed by all. Read more
Join us for a FAQ’s session with three of the UKs Myasthenia Specialist Nurses. Read more
My Awareness Month CMS Zoom, with special guest from the Oxford NHS CMS Neurology Team Read more
Webinar with Dr Channa Hewamadduma - Fatigue, Exercise & Self- Management with Myasthenia Read more
Take part in the London Marathon 2025, the greatest marathon in the world! Sunday 27 April 2025 Read more
If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session'! Read more
Has it been a while since you spoke to anyone else who has Lambert-Eaton myasthenic syndrome or LEMS, sign up here... Read more
VML are a medical communications company keen to learn more about the unmet needs of those living with myasthenia.... Read more
The EUMGA has relocated to Belgium .... read more here Read more
To raise awareness for people around the world living with myasthenia gravis Read more
Current Vacancies in myaware...click here for more details. Read more
How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias? Join our drop in to chat to others with myasthenia! Read more
COUCH Health is inviting people living in the UK with myasthenia gravis to participate in an online interview session. Read more
Myaware and MDUK sent a joint letter to NICE and the related companies about targeted therapeutics in the myasthenia community. Read more about our letter and petition here Read more
Can you help myasthenia awareness bloom this Rare Disease Day? Read more
A much loved father, grandfather and great grandfather to Sally, Nigel, Debbie, Paul, Stuart, Thomas, Stefan, Jessica, Aria, Seb, Miles and Joey Read more
A webinar recording by Dr Katherine Dodd, Neurology Clinical Research Fellow, discussing emerging treatments, exercise, lifestyle, and individualising care using biomarkers on 21st February 2024 Read more
A team at King’s College London has developed a new online peer support platform in collaboration with people living with long-term physical health conditions. They are interested in finding out what people think about the new intervention, such as what they like and dislike. Want to get involved? Read more
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Myaware are continuing to engage with the relevant companies linked to the Propantheline Bromide shortage. In the meantime, we have some guidance regarding alternatives and importers for unlicensed propantheline. Read more
Efgartigimod is due to be assessed in a 3rd committee meeting with NICE in May. We are looking for the myaware community to put forth their own comments about the appraisal process so far and have prepared a guide for those who may not have done this before. Read more
There is currently a supply shortage of Propantheline Bromide. Though muscle relaxants can be contraindicated in myasthenia, Buscopan is an alternative. Read more
Applications are now open for funding towards myasthenia specialist nurses Read more
Run for myaware in the AJ Bell Great North Run! Read more