Hi! I'm Nicola and I live in Kent.

As a family we have all been affected by myasthenia. I was diagnosed during my first pregnancy and my daughter died at delivery due to myasthenia related complications.

My two sons were also affected. My eldest, who is now 8, is still significantly affected and my youngest who had transient neonatal myasthenia grew out of the condition by around nine months old. It's not been easy by any means but we have been so well supported by myaware and our medical team and we soldier on as best we can!

We remain positive and Zane loves to fundraise and raise awareness wherever he goes!