October 2024 was a month not wanting to repeat. Our dad, Dean was admitted into hospital with a condition yet to be diagnosed. There he spent 10 days having test after test run and no conclusion. Eventually in November, a neurologist shed light on this diagnosis and informed our family that he has Myasthenia Gravis. This is a very rare condition and only 15 in every 100,000 people in the UK are diagnosed with this. This is a very rare long-term condition that causes muscle weakness. It most commonly affects the muscles that control the eyes, eyelids, chewing and swallowing. This, thankfully is a treatable condition but sadly not curable. Dean is managing this condition with the guidance from his neurologist and hopefully in the near future, will have the Thymus gland removed which will aid the need for not taking such high doses of medication. He is doing really well at the moment and bar fatigue that comes with this condition, leading his “new norm” life. Us as a family have had to adjust to this new way of life to some degree and from not ever hearing about Myasthenia Gravis, to leaning on the brilliant MYAWARE charity organisation that has been providing constant valuable information and webinars for my parents to lean on. This is why myself and my brother have decided to use the MYASTHENIA GRAVIS AWARENESS MONTH OF JUNE to do our own individual challenges to raise money for this extremely valuable source of support.
We would like to thank you for your donation, no matter how small towards this charity to allow them to continue providing this to those who find themselves without a paddle and looking for answers and support.
Thank you so much on behalf of our family, we hugely appreciate your love and support. Tyron Zaltsman