Tony Ferrari

Tony is the Senior Risk and Assurance Manager at Oxford University Hospitals NHS Trust. With a background in Governance,

Procurement, Emergency and Risk Management in the NHS, Local and Central Government, having spent his career in the Public Sector. He lives in Oxfordshire with his wife, they have two adult children. 

He was diagnosed with Myasthenia Gravis in 2018 at the age of 57 and discovered Myaware the same day, having immediately looked up Myasthenia on his phone as not surprisingly had little knowledge of the condition. He found the website a valuable source of information and assistance especially in those early days. He has managed to carry on in full time work as his symptoms are reasonably well controlled by medication and strives to lead a normal life as possible.

He has previous experience as a charity trustee, has served on committees for various organisations, national clubs, other charities and British Cycling. A mountain bike racer when younger, then an International Cycling Official for 25 years, only retiring from this after diagnosis. He also raced motorcycles off-road in cross country rallies, right up until diagnosis. No longer able to compete, he now helps organise competitive motorcycle navigation rallies.