Myasthenia means muscle weakness - share your strength this May.

When is My Awareness Month?

My Awareness Month is myaware's first awareness month, to be held in May 2019 across the UK.

Why is it happening?

  • To raise awareness of myasthenia with the general public and medical professionals
  • To support people living with myasthenia and their families
  • To raise funds so that myaware can continue to provide support to families affected by myasthenia, raise further awareness of the condition and fund research into myasthenia.

What is this year's theme?

This year’s theme is ‘you, me and myasthenia’. As we know, people living with myasthenia have a whole network of support, who help them to live well with the condition. This support network can often include carers, family, friends and colleagues, but can also include myaware members via online groups or at face-to-face support groups, medical professionals or other statutory providers.

We want to celebrate the stories of those living with myasthenia (the ‘Me’) and those who help them to manage the condition on a day-to-day basis (‘You’). By doing so, we hope to raise awareness of myasthenia and the impact it has on people’s lives as well as sharing experiences and providing inspiration to others living with the condition.

We also want to focus specifically on families (‘You’) living with myasthenia and provide increased support to this wider network affected by the condition.

Share Your Story

This month we are asking members to share their myasthenia story.

To get involved, let us know in 200 words how myasthenia has changed your life, who your support network is and your top tip for living with myasthenia. Once you've written it, send it to [email protected] along with an image.

To get started, you can view other people's stories here.


Raise awareness of myasthenia by travelling!

Order your two free wristbands here, pass one to your friend, take a selfie of you wearing your wristbands at a local landmark and share it with @myawareUK on Twitter and Instagram using the #passthewristband hashtag.

Tag the location to help raise even more awareness of the condition.

Donate to our Awareness Month