General Guidance, Information and Support

Information and links to country specific general and specific advice for higher risk patients can be found on our website:

General Guidance, Information and Support

Latest

LEMS Support Online Zoom Session

Has it been a while since you spoke to anyone else who has Lambert-Eaton myasthenic syndrome or LEMS, sign up here...
Survey by VML

VML are a medical communications company keen to learn more about the unmet needs of those living with myasthenia....
The European Myasthenia Gravis Association

The EUMGA has relocated to Belgium .... read more here
Hari's 3 peak challenge for Myasthenia Gravis and Thymic Cancer Awareness

To raise awareness for people around the world living with myasthenia gravis

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Drugs to Avoid

Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.
The Extraocular Muscles

The extraocular muscles are the six muscles that control the movements of the eyes.
Ocular Myasthenia

Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.
Intravenous Immunoglobulin

IVIg is given intravenously into a vein via an infusion pump.
What is myasthenia?

The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.
Myasthenia Gravis

Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.
Driving

People with myasthenia MUST inform the DVLA that they have the condition.
Thymectomy Information

Find out how a thymectomy can help people with myasthenia gravis.
Steroid Information Sheet

Steroids are a type of medication called an immunosuppressant.
LEMS

Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.