Fundraise for myaware

Who cares for you? Do they see themselves as a carer?

This May, we are shining the spotlight on those who help care for someone living with myasthenia. Many carers don’t see themselves as carers and find it difficult to see their caring role as separate from the relationship they have with the person for whom they care, whether that relationship is as a parent, child, sibling, partner, or a friend.

However, caring for someone can be challenging. From the smaller day-to-day tasks that can be so often overlooked, such as making a cup of tea or listening to how a loved one is feeling, to bigger tasks such as driving to appointments or personal care, every carer counts.

This My Awareness Month, those living with myasthenia are being given the opportunity to thank those who care for them. We are delighted to share Sara and Samuel’s story with you, which shows how teenage Samuel cares on a day-to-day basis for his Mum with kindness, resilience, and a sense of humour!

“For the past 14 years since Sam was born, we’ve been living with myasthenia gravis together…”

Click below to hear from Sara and Samuel:

Who cares? We care!

We support those who care for people living with myasthenia, like Samuel. Our carer members have access to:

A dedicated web page for carers
One-to-one advice from myaware Support Co-ordinators
Peer Support Facebook Groups
The myaware Medical Committee, for answering of general questions
Carer Zoom Support Sessions
Benefits and Welfare Advice
Emotional Support and Counselling
Quarterly Newsletter

These services are all free of charge to our carer members. But we need your help to continue supporting carers.

We are the only UK charity solely dedicated to supporting people living with myasthenia and their carers. We are the myasthenia community.

We rely on voluntary donations from generous individuals and organisations to help us fund our services for carers.

Can you help us?

Your donation of £10 will help to ensure we can continue to support carers and families like Sara’s.

For more information about My Awareness Month and to get involved by thanking those who care for you, visit our dedicated webpage here.

Thank you for caring with us and we hope you stay safe and well.

Sarah Cuthell, Chief Executive Officer