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  1. Events
Skip Some and Give Some Challenge 2022

Skip Some and Give Some Challenge 2022

Can you commit to making a small change in your own life for twelve months while also helping to change the lives of others? Read more

Start: 21st December, 2021 at 8:00am

End: 31st December, 2023 at 8:00am

Published: 5th January, 2022

Updated: 26th January, 2023

Author: Chris Millard

Location: Online

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LEMS Support Online Meeting

LEMS Support Online Meeting

Has it been a while since you spoke to anyone else who has Lambert Eaton Myasthenic Syndrome or LEMS?... Read more

Start: 11th October, 2023 at 6:00pm

End: 11th October, 2023 at 7:30pm

Published: 1st September, 2023

Author: Chris Millard

Location: Online

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CMS Members Drop In Zoom Session

CMS Members Drop In Zoom Session

This drop in session is specifically for members with Congenital Myasthenic Syndrome (CMS) where we will be able to offer you a chance to meet up, share your experiences and hear updates from our support team. Read more

Start: 18th October, 2023 at 1:30pm

End: 18th October, 2023 at 3:00pm

Published: 15th August, 2023

Updated: 7th September, 2023

Author: Chris Millard

Location: Online

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October New Members  Zoom

October New Members Zoom

If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ Read more

Start: 18th October, 2023 at 6:30pm

End: 18th October, 2023 at 8:00pm

Published: 11th August, 2023

Author: Chris Millard

Location: Online

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October Drop In – Zoom Session

October Drop In – Zoom Session

How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands? Read more

Start: 25th October, 2023 at 1:30pm

End: 25th October, 2023 at 3:00pm

Published: 11th August, 2023

Author: Chris Millard

Location: Online

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November New Members Zoom Session

November New Members Zoom Session

If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ . Read more

Start: 9th November, 2023 at 1:30pm

End: 9th November, 2023 at 3:00pm

Published: 14th August, 2023

Author: Chris Millard

Location: Online

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November Drop In – Zoom Session

November Drop In – Zoom Session

How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands? Read more

Start: 23rd November, 2023 at 6:30pm

End: 23rd November, 2023 at 8:00pm

Published: 14th August, 2023

Author: Chris Millard

Location: Online

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December New Members Zoom Session

December New Members Zoom Session

If you are recently diagnosed and/or have just joined myaware because someone you know has been diagnosed, then come along to our ‘New Member Zoom Session’ . Read more

Start: 1st December, 2023 at 6:30pm

End: 1st December, 2023 at 8:00pm

Published: 14th August, 2023

Author: Chris Millard

Location: Online

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December Drop In – Zoom Session

December Drop In – Zoom Session

How have you been? Has it been a while since you spoke to anyone else who has any of the myasthenias, does it sometimes feel like no one else understands? Read more

Start: 12th December, 2023 at 1:30pm

End: 12th December, 2023 at 3:00pm

Published: 14th August, 2023

Author: Chris Millard

Location: Online

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December Kids Group Drop-in & Catch-up Zoom

December Kids Group Drop-in & Catch-up Zoom

How are you and your family? Has it been a while since you spoke with anyone living alongside myasthenia? Read more

Start: 13th December, 2023 at 6:30pm

End: 13th December, 2023 at 8:00pm

Published: 14th August, 2023

Author: Chris Millard

Location: Online

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Back to top

Latest

  • Fiona's Story

    Fiona's Story

    I want to raise as much awareness for myaware as possible, as my pharmacist and diabetic nurse didn't know what myasthenia was. If I see first aiders I always go and chat with them about myasthenia. Most of them have never heard of it either.

  • Efgartigimod: NICE Appraisal Update

    Efgartigimod: NICE Appraisal Update

    Guidance not recommending the use of Efgartigimod on the NHS. Click here to find out more...

  • LEMS Support Online Meeting

    LEMS Support Online Meeting

    Has it been a while since you spoke to anyone else who has Lambert Eaton Myasthenic Syndrome or LEMS?...

  • Autumn 2023 Flu and Covid Vaccination Programme

Most read

  • Drugs to Avoid

    Drugs to Avoid

    Reactions to drugs are specific to the individual. Nature has made the ignition system very secure.

  • The Extraocular Muscles

    The Extraocular Muscles

    The extraocular muscles are the six muscles that control the movements of the eyes.

  • Ocular Myasthenia

    Ocular Myasthenia

    Ocular myasthenia is a form of myasthenia in which the extraocular muscles, the muscles that control the eyes and eyelids, are easily fatigued and weakened.

  • Intravenous Immunoglobulin

    Intravenous Immunoglobulin

    IVIg is given intravenously into a vein via an infusion pump.

  • Thymectomy Information

    Thymectomy Information

    Find out how a thymectomy can help people with myasthenia gravis.

  • Myasthenia Gravis

    Myasthenia Gravis

    Myasthenia gravis (MG) is an autoimmune condition. Your own antibodies will attack communications between your brain and muscle movements.

  • Driving

    Driving

    People with myasthenia MUST inform the DVLA that they have the condition.

  • LEMS

    LEMS

    Lambert-Eaton myasthenic syndrome (LEMS) is an autoimmune condition. Your antibodies attack the nerve endings and stop muscles contracting causing muscle fatigue.

  • Steroid Information Sheet

    Steroid Information Sheet

    Steroids are a type of medication called an immunosuppressant.

  • What is myasthenia?

    What is myasthenia?

    The myasthenias are a group of neuromuscular conditions. They are rare but also manageable.

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