One of Helen's three small boys has congenital myasthenia. She met other parents of children with myasthenia or CMS through myaware. She found this enormously helpful and instrumental in getting the right support for her son at school and in the community. She runs a specialist publishing company called UKAuthority, which focuses on the use of technology to improve the delivery of public services. She believes that myaware can make efficiency savings and forge closer links to members by using technology (internet, social media)