Join us for an educational day on congenital myasthenic syndromes with a focus on the future of gene therapy. The day will include talks on gene therapy in neuromuscular disease, discussions on a future role for gene therapy in CMS, an update on research projects, support services for patients and families and anaesthetic considerations in CMS.

10am – 13.15(please note we will open the session at 9.45am to allow people time to join and be admitted in, to enable us to start promptly at 10am)

REMOTE CMS PATIENT DAY
5th DECEMBER 2020
AGENDA

10.00 am welcome Chair Dr Jackie Palace
10.05 am Introduction to CMS Dr Pinki Munot
10.20 am Gene Therapy in non CMS Neuromuscular Disease Dr Sithara Ramdas
10.35 am Is there a future role for gene therapy in CMS Prof David Beeson
10.50 am Update on other research projects:
                clinical database analysis Setareh Alabaf
                natural history study Hayley Ramjattan
11.05 am Questions & Answer Session

11.30-11.45 Break

11.45 pm Support Services for Patients and Families Steve Bradshaw (Myaware)
12.15 pm Anaesthetic Considerations in CMS Dr Vineetha Jayakumar
12.35 pm Panel – Questions

Finish 13.15

Registration is essential. To join, please register below.

For more information you can contact Karen Donaghey on
07851 248106 [email protected]

Booking for this event has now closed.