Myaware is the name for the Myasthenia Gravis Association. MGA has been around since May 1976. We support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and support staff. Members of myaware can access our free benefits and counselling services.

If you’ve just been diagnosed with myasthenia, you’ve come to the right place. Our aim is to make your life easier. We provide information, advice and support. Call us now or join myaware online. You will have free access to our resource centre which includes advice on everything from the latest medical developments and treatments to how to negotiate the benefits system. You can also get in touch with other members who understand what you are going through.

 

Ruth takes the plunge to help people with rare disease

 

Ruth Ingledew turned fearless fundraiser to complete a 250-metre zip slide in support of people suffering from a rare disease.

Ruth took the plunge off the Tyne Bridge, in Newcastle upon Tyne, in aid of Myaware, the Myasthenia Gravis Association and raised over £1,000, far exceeding her target of £100, with the hair-raising stunt.


She was joined by another five local Myaware supporters who also completed the zip slide to bring in a further £2,500 for the charity.

They included myasthenia patient 79-year-old David Lees and twin sisters Bobby and Hannah Solly, who raised funds in memory of their grandmother, who was diagnosed with myasthenia shortly before she died.

Local women Lisa Merriman and Katrina Bell, who also have myasthenia, completed the zip sliding fundraising team.

Ruth said: “I’ve never done anything like this before, and I was quite apprehensive but excited before the event – I thought it would be a lot of fun.

“I used to work in the North East so I have fond memories of that area – it’s a lovely city and such an iconic bridge. I’ve travelled over the Tyne Bridge hundreds of times – but I was unprepared for what it would be like to slide down a zip wire from it!

“It was a bit scary – really fast but good fun. The worst bit was at the start – it was very windy but we had to get up on the bridge, go up a step-ladder and climb onto the parapet before sitting on the edge waiting to go.”

Ruth added: “I wanted to lend my support, not only to bring in funds for our work but also to demonstrate how grateful the charity is to our supporters and regional organisers of fundraising events like this.”

To support Ruth’s fundraising drive, go to https://www.justgiving.com/Ruth-Ingledew/

Myaware organises a wide range of fundraising events throughout UK and Ireland, from running marathons to holding coffee mornings.

The charity supports people with myasthenia, a debilitating disease which causes muscle weakness. The potentially life-threatening condition can affect a person’s vision, speech, mobility and even their ability to breathe.

 

 

 

 

© 2015   Myasthenia Gravis Association

Donate