Myaware is the name for the Myasthenia Gravis Association. MGA has been around since May 1976. We support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and support staff as well as offering a benefits service.

If you’ve just been diagnosed with myasthenia, you’ve come to the right place. Our aim is to make your life easier. We provide information, advice and support. Call us now or join myaware, our online community. You will have free access to our resource centre which includes advice on everything from the latest medical developments and treatments to how to negotiate the benefits system. You can also get in touch with other members who understand what you are going through.

 

Therapeutic Monitoring of Azathioprine Metabolites in Myasthenia (Drs Rae and Pinto, Southampton)

This study is hoping to improve the management of patients with Myasthenia Gravis. Azathioprine is a drug commonly used for the treatment of Myasthenia Gravis. However, patients often experience different responses to azathioprine; some with good symptom control, others with less improvement and as azathioprine often takes a while to produce an optimum effect this could mean that some patients maybe badly controlled for some time.

This project hopes to be able to predict from simple blood tests who will response and who will not so that treatment can be changed earlier if needed.

We are currently recruiting patients with Myasthenia from the Wessex Neurological Centre Southampton to test their blood, alongside routine blood tests, for levels of azathioprine. So far 6 patients have been enrolled into the ongoing study. The aim is to initially recruit 20-30 patients with myasthenia. It is hoped that the study will be expanded to other Neurological departments in the future.

 More information regarding this study is available here

 

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