Myaware is the working name for the Myasthenia Gravis Association. MGA has been around since May 1976. We support people with myasthenia and their families, increase public and medical awareness of the condition and raise funds for research and support staff.

If you’ve just been diagnosed with myasthenia, you’ve come to the right place. Our aim is to make your life easier. We provide information, advice and support. Call us now or join myaware, our online community. You will have free access to our resource centre which includes advice on everything from the latest medical developments and treatments to how to negotiate the benefits system. You can also get in touch with other members who understand what you are going through.

First and foremost, do not panic. Myasthenia is rare but it is also manageable. With proper care and medication it can usually be tamed so that you can get on with your life.

Myasthenia means muscle weakness. It affects the muscles that let you move but not the automatic ones like your heart that you don’t have to think about. Your brain tells your muscles to work, but the message doesn’t get through.

In a few cases this may be caused by gene faults you were born with (Congenital myasthenia or CMS). More people develop during their life (Myasthenia Gravis or MG; Ocular MG or Lambert Eaton Myasthenic Syndrome or LEMS).

MG and LEMS are autoimmune conditions and antibodies which normally fight infections go wrong and attack the communication system between the brain and your movement muscles.

The symptoms of myasthenia include muscle weakness which makes day to day activities like walking, smiling and talking very difficult. When swallowing and breathing are effected and this can lead to medical emergency.

We think there are around 10-12,000 people with myasthenias in the UK and Ireland but at the moment there are no accurate published figures.

 

Government help lines and addresses

Information is available on-line from www.direct.gov.uk and also from Age Concern and Citizens Advice Bureaus (Address in your local telephone book)

 

Telephone Help Lines

Have your NI Number to Hand

Benefit Enquiry Line (disabilities and carers)

General information about all kinds of benefits.

Opens: 8.30am to 6.30pm weekdays. 9am to 7pm Saturday.

Tel: 0800 882200

Web: www.direct.gov.uk/disability and: www.direct.gov.uk/carers

Attendance Allowance

Opens: 7.30am-6.30pm weekdays

Tel: 0845 7123456

Carer’s Allowance

Opens: 8.30am to 5pm Mon-Thurs. 8.30am to 4.30pm Fridays.

Tel: 0845 6084321

Vaccine Damage Payments

Opens: 9am to 5pm Mon-Thur. 9am to 4.30pm Fridays.

Child Tax Credit or Working Tax Credit

Tel: 0845 300 3900

Pension Credit

Tel: 0800 99 1234

Addresses

For Attendance Allowance

Attendance Allowance Unit
Warbreck House, Warbreck Hill
Blackpool FY2 0YE

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

For Carer’s Allowance

Carer’s Allowance Unit

Palatine House
Lancaster Road
Preston
PR1 1HB

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

For Disability Living Allowance

Disability Living Allowance Unit

Warbreck House
Warbreck Hill
Blackpool
FY2 0YE

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

For Vaccine Damage Payments

Vaccine Damage Payments Unit

Palatine House
Lancaster Road
Preston
PR1 1HB

Email: This email address is being protected from spambots. You need JavaScript enabled to view it.

© 2014   Myasthenia Gravis Association

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