New Genetic Alliance UK Project Recruiting Now - Get Your Views Heard!
New medicines: How should we weigh the risks and benefits? And who should do so?
Genetic Alliance UK is launching a recruitment campaign for an innovative and exciting research project about new medicines.
They are looking for people who are affected by a severe, rare or genetic condition, to take part in a Citizens’ Jury later this year. They are looking for up to 16 individuals to form a diverse jury that will deliberate a very important issue - the risks and benefits of new medicines. Not only will jurors get their voice heard in an innovative and high profile way, but they will be paid for their time too!
There is further information available about the project and how people can get involved on the Genetic Alliance UK website, including a short explanatory video clip and an online questionnaire for people to register their interest.
If you are a patient organisation, we would be extremely grateful if you could share information about the project and recruitment campaign with as many of your patient members and networks as you can. The aim is to generate as much awareness and interest in the project as possible! Genetic Alliance UK have a range of material and literature, which can be distributed via emails, patient group websites and newsletters. To get access to these documents (or to simply find out more) please contact Project Officer, Amy Simpson (
) or Marketing Officer, Julian Walker (
Thank you in advance for your support with this recruitment.
Rare Disease UK
Unit 4D, Leroy House
436 Essex Road
MGA is a Registered Charity No. England & Wales 1046443. Scotland SC044744. Company Limited by Guarantee No. 3038358 (England) Myaware (Myasthenia Gravis Association), The College Business Centre, Uttoxeter New Road, Derby DE22 3WZ Tel: 01332 290219 Web: www.myaware.org Email: firstname.lastname@example.org