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A little bit of local publicity
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A little bit of local publicity 03 Apr 2012 11:26 #1733445

  • twis
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From the Oxford Mail; this is me and my twin sister.

www.oxfordmail.co.uk/archive/2012/04/03/...he___s_fighting_fit/

I'm working on getting the obvious inaccuracy corrected - obviously myasthenia gravis is not a muscle wasting disease. It's because the Town and Gown is organised by the Muscular Dystrophy Campaign (who support MG) so the reporter has extrapolated from this.

Re: A little bit of local publicity 03 Apr 2012 14:38 #1733447

  • jantoo
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Oh well done Twis! wish I could wobble along to see you doing it!

Speaking about inaccurancies I am always puzzled as when you go on google and see the phrase' appears to the sufferer' when you look at the link for M.G.A. It implies to some people that it only 'appears' to the sufferer...or is it me just being pedantic and thick!

Re: A little bit of local publicity 03 Apr 2012 15:05 #1733448

  • CarolO
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Well done Twis - I'm a bit jealous.

Would love to be able to do something similar.

Is it the London Marathon next!?!? only joking - but I wish I could do that too.....

Best wishes.

Carol x

Re: A little bit of local publicity 03 Apr 2012 18:13 #1733450

  • alice
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That's great and what lovely kids you have.

Re: A little bit of local publicity 04 Apr 2012 16:37 #1733461

  • VickyG
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Wow! thats brill good luck to you and all the best on Sunday 13th May, go for it!

Re: A little bit of local publicity 11 Apr 2012 11:50 #1733520

  • ragdoll
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good luck and remember you don't have to run, walking is ok too!

Re: A little bit of local publicity 20 Apr 2012 21:57 #1733715

  • twis
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And now we've also been interviewed by the local Oxford radio station:

http://www.bbc.co.uk/programmes/p00qv9fn 1:07:15 to 1:18:40 but for the next 7 days only.

There was so much more I wanted to say but having listened to it again it wasn't a bad effort. We weren't expecting the questions about being twins but we've answered them so many times before that they weren't a problem!
Last Edit: 23 Apr 2012 15:07 by rich.

Re: A little bit of local publicity 23 Apr 2012 12:59 #1733734

  • jonk
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Yes good luck Twis, hopefully you will enjoy it.

Fancy a joint London Marathon effort next year

Re: A little bit of local publicity 23 Apr 2012 15:05 #1733736

  • twis
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Ah-ha-ha-ha-ha-ha!

No.

I have walked the route of the London Marathon and did on that occasion swear to never run it.

Re: A little bit of local publicity 15 May 2012 11:15 #1733931

  • ragdoll
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how did it go Twis?

Re: A little bit of local publicity 15 May 2012 19:52 #1733954

  • twis
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Very well, thank you for asking. Our official time is 1 hour 13 minutes and 3 seconds. It's slow, but for my first 10k and running with a 6 month pregnant sister, I think it's OK. There is photographic evidence of me running, but I don't look pretty! It looks as hard as it felt.

We managed to raise over £1,000 for the Muscular Dystrophy Campaign, so we're pleased.

And in a mad, crazy twist, I've signed up to do another 10k in October. I've got a personal best to beat now.

Re: A little bit of local publicity 16 May 2012 15:30 #1733966

  • rich
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Ed Titley from Leicester agreed to do a Leicester Mercury article about his Myasthenia Gravis
It appeared on 28th April You can see the full version and download on our website

The Link To It is Here
Thank You Ed
Do you have any articles from Newspapers or Magazines Let us know
Last Edit: 16 May 2012 15:31 by rich.
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